Symptoms of Hypothyroidism

Sleep has always been an important part of my life, and I’ve been able to sleep in some pretty spectacular situations – from a sun-warmed stone on a mountain top to the bouncing bow of a boat in the cold, driving rain. In hindsight, my ability  – or need- to nod off was probably a symptom of my thyroid disease.

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Recently I have met a lot of people with hypothyroidism, or suspect they have it despite their blood work being normal. Many of these people have a long list of symptoms that they have never associated with their thyroid condition and have lived with them for years. They are are used to feeling less than optimal and easily put these, often non-specific, symptoms down to age or lack of sleep.

But what if you could feel better? What if you could get rid of those aches and pains?  Today I want to give you a more comprehensive list (but by no means exhaustive) of the symptoms you may experience with hypothyroidism – there may be more than you may realise.

Chronic symptoms of hypothyroidism can be reduced or eliminated through changes in eating habits and lifestyle.

I’m walking proof of this. I have gone from being bedridden, aching all over and barely able to move to, on the whole, being fully functional!  I still get the odd flare-up, but there is usually a clear cause, such as over working, catching a horrible bug or letting my sugar consumption creep up. When this happens I know I have to go back to basics and “Reboot“, to get back on track. And it works.

If you have hypothyroidism, particularly Hashimoto’s thyroiditis, and suffer from chronic symptoms it’s important you know that they are an indication that your body is not functioning at it’s best. You have those symptoms for a reason.

Masking symptoms with pain killers and supplements without addressing the cause can compromise your long-term health.

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If you have these symptoms please know that you can feel better. It may take time. It may take effort, but it is possible! With no help or guidance from medical doctors as to how to manage my diagnoses (first CFS and then Hashimoto’s thyroiditis), just a prescription for Thyroxine, for a long time I thought I was going to be virtually house-bound for the rest of my life. Thank goodness I took control of my health and made the necessary changes to feel better.

I read and researched. I used my background in Immunology to understand the science behind my disease, then I listened to my body and used my knowledge of nutrition to heal and get as healthy as possible.

Here is a list of some of the symptoms you may have, even if you’re taking thyroxine. How many of these do you have?

  • Palpitations
  • Fatigue
  • Slow speech
  • Slow movements
  • Brain fog/confusion/forgetfulness
  • Liver tenderness
  • Insomnia (yes, even with hypothyroidism)
  • Hypoglycaemia
  • Muscle and joint stiffness
  • Fibromyalgia
  • Pins and needles
  • Puffy, itchy, scratchy eyes
  • Puffy hands and feet
  • Cold extremities/ low basal body temperature
  • Irritable Bowel Syndrome (IBS)
  • Tinnitus/hearing problems
  • Restless legs
  • Hair loss
  • Eczema/ dry skin
  • Migraines
  • Blurred vision
  • Anxiety
  • Mood swings
  • Inability to cope with stress

I had more than 75% of these symptoms and I was misdiagnosed for 5 years. Now I live largely symptom free!

Get in touch to hear how we can work together to improve your health and get rid of your symptoms.

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If you have some of these symptoms and haven’t got a hypothyroidism diagnosis, then it’s advisable to talk to your doctor. These symptoms don’t mean you DO have hypothyroidism and are not meant for diagnostic purposes. If you are at all concerned about your health, then make an appointment to see your doctor.

I am happy to help you make positive dietary and lifestyle changes alongside your medical doctor.

Take control of your health and feel better!

With warmth,

Caroline x

P.S. Have you signed up to my mailing list? Click here for information and offers straight to your inbox, including FREE Pukka Tea when you register for The Reboot!

P.P.S. Interested in health coaching but not sure what to expect? Have  read of THIS page or send me an email HERE.  You can have a FREE Discovery Session with no obligation to sign-up for coaching. Remember, I can coach you no matter where in the world you are!

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The Reboot

It’s officially Springtime! Hooray!

I love Spring – it is so full of colour and hope, especially after a long, grey winter (which they usually are here!). I find this change of season inspiring and optimistic.  After being in hibernation mode for winter,  I’m ready for the gorgeous sunshine we have had in recent days here in Devon – long may it last! It makes me want to grab life with both hands and go out and live it!

If only I had the energy and time (right?)

As you may know, I’ve had my health problems in recent years, and I know what it is like for your brain to want you to do something, but your body to outright refuse. I have been there, held captive by exhaustion and fatigue – willing my eyes to stay open long enough to read a book, or to stay focussed enough to make a serious phone call. Getting myself out of that state required a major Reboot. A focus on myself and my health. Read more about it HERE.

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Even now I know when I have been overdoing it. When I haven’t been getting my 7-9hours of sleep (I have two young kids, so this is pretty much a given), when I have been rushing from A to B and sorting everyone else out.  I notice that I am less focused, tired all the time and readily feel overwhelmed – I’m not functioning my best. I know that I am putting my health second, which is not sustainable and is not a good thing!

To battle tiredness I get tempted by sugary foods and caffeinated drinks to get me through the day. We all know that this is a temporary fix, and it usually leaves me feeling worse, not to mention the longer term consequences. But how many of us get stuck in this cycle?  I know I’m not alone in this!

It is time to break the cycle! Reboot NOW

There is no better time for change than Spring – shake off that winter lethargy and refocus on your health. Feel Better!

Give yourself the best chance at making positive changes and making them stick.

Check out my new health coaching package: The Reboot

Are you ready to have:

  • More energy
  • Better sleep
  • Weight loss
  • Less chronic inflammation
  • More control of your health

And more!

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Waiting

(Caring for Cancer, Part 2)

Read Part 1 “How our Cancer Story Began” HERE

I never realized just how excruciating waiting could be.

We had already waited an agonising two weeks on the query-cancer pathway for the Consultant Oncologist appointment, and we had left with nothing more than the promise of more waiting. We had naively believed that we would walk out of that appointment with at least a possible diagnosis – it was a query-cancer after all, surely that was urgent? Admittedly the oncologist had stated that my husband did not have cancer, and it was only my absolute confidence in my research, plus a little tenacity, that had secured a follow-up appointment. But, still we had to wait.

We waited for the phone call. We waited with no answers, no plan, no control and no idea when we might hear. By now my husband was in chronic pain and, understandably, clung to the possibility that his symptoms were caused by an infection – after all, that was what the Oncologist had said.

My reality was different.

I had read the research papers. I had assimilated the data presented to me. I was convinced he had cancer, probably metastasized. I knew that with every day that passed his chances of a good prognosis reduced. But all we could do was wait.

My sleepless nights continued – full of anxiety, despair, silent tears and newborn comfort. In a strange way these quiet, long nights offered some relief – a private space to release emotions pent-up during the day.

In the day time anxiety, dread and fear plagued me constantly, but some semblance of normality had to continue. I had a three month old to nurse, feed and change, and a perceptive and inquisitive toddler that, quite rightly, demanded my attention. I had to run the house; do the food shopping, plan dinner, put the washing on, tidy up. I had to interact with other people – talk with neighbours, friends, the postman. I had to go through the motions of normal life. I had to keep it all in.

Staying in control of my emotions was hardest with my son. I struggled to be the happy, playful and present Mummy he knew. I struggled because the real me was fracturing and crumbling inside – unraveling in panic that we would be left alone because a diagnosis would come too late. If he caught me off guard, in his innocence and with empathy he would ask “are you sad Mummy?” My mind would gush with the adult out-pouring that I craved, and my heart longed to squeeze him tight in a possessive embrace and to simply sob. Instead, I would pull him close and allow a few tears to roll down my cheeks as he nestled, unaware and protected, into the crook of my neck.

Adding another layer to my anxiety was the constant threat that my husband might leave the country.

With his family overseas, and aware of the American-style of medical care, understandably his patience with the long, bewildering NHS process was reaching its limit. He wanted to fly away and check into a hospital that wouldn’t discharge him until they had uncovered exactly what was wrong, and treated him for it. Family and friends scattered across the globe were making suggestions; Germany, Costa Rica the USA… I had to admit, the idea of a quick diagnosis was giddily tempting, save a few key points:

  1. The kids and I couldn’t go with him. Our daughter, at just 3 months old, didn’t have a passport. There was a chance that if he got on a plane, I would never see him again.
  2. Being his advocate would be significantly harder. Even if I could follow him later with the kids, I was unsure of my ability to be his advocate in an unfamiliar medical system, living in a hotel and possibly operating in a foreign language.
  3. The NHS has a world-class specialist cancer treatment hospital. If the diagnosis was cancer, then the UK was the place to be.

I felt trapped. I selfishly wanted him to stay, but what if that meant everything happened too late? What if by staying it ultimately led to the worst prognosis? How could I stop him from going?

In truth, I couldn’t. Every day or so he would send me flight details and ask my opinion.

If I didn’t want my husband to leave the country, I had to take matters into my own hands. I had to make the NHS work for us – I could no longer wait for the cogs of the NHS to slowly turn on their own.

In and around being Mummy, housewife and nurse to my poorly husband, I contacted the Patient Advice and Liaison Services (PALS). I updated them almost daily with the lack of progress in my husband’s diagnosis. I spent hours on the phone, ringing the abundance of wrong numbers on hospital websites and waiting on hold to finally reach the relevant secretary or other admin person. I chased everything up and followed every possible avenue to check that everything was in place, all the paperwork had been done and the right people explicitly knew our situation.

Just in case all my efforts were in vain, I also organized my daughter’s passport. I gathered all the relevant documents and signatures and managed to get a photograph of my 3 month old looking straight at the camera with eyes open (no mean feat!). I also just about managed to hold it together in the Post Office when I was told they couldn’t accept my application because of a typo – the fear of my husband flying away without us was renewed and amplified. Somehow I managed not to burst into floods of tears as, at the same time, my toddler was having a meltdown near the stick-it notes and my daughter, strapped to my chest, was desperately head butting me for milk, which had by now, glamorously, saturated my breast pads and was trickling down my front.

 

At last, we received the phone call and were given confirmation of the ENT oncology appointment – just a few more agonizing days to wait. Thankfully this was enough progress to quell my husband’s itchy feet.

Midmorning the day before the ENT appointment, the Consultant Oncologist called my husband at home, which in itself seemed odd. Apparently, while showering, the ‘diagnosis’ had occurred to him – a rare and treatable bacterial infection known as ‘Cat Scratch’. He’d already booked blood tests to confirm his suspicion.

My husband was beaming – in an instant our future had gone from looking bleak to no longer being under threat. He wanted to celebrate, and I wanted to join him.

But I couldn’t celebrate.

My hugs and smiles were strained – something wasn’t right. I didn’t believe it was Cat Scratch – I knew it wasn’t Cat Scratch.

Cat scratch had come up as a possibility in my literature search when I first suspected something sinister. I had eliminated it as an option because the symptoms and timeline didn’t quite fit. I had concluded Lymphoma and/or an abdominal tumour. From my research I had concluded cancer and, as always, I trusted my research.

This was not what my husband wanted to hear from me. He was ready to cancel the ENT oncology appointment – after all who was I to diagnose cancer when the oncologist said infection?

Thankfully, he agreed to go to the appointment.

In the waiting room my Mum rocked the pram. I buzzed with nervous anticipation and my husband fidgeted. This had to be the appointment when things moved ahead. Finally we were called in. After a series of examinations and questions, the oncologist paused, looked at his hands then announced that he thought my husband was seriously ill, and that he probably had been for some time. His best guess was Lymphoma.

Wow. The sense of relief was almost overwhelming – at last someone was on the same page as me, now they surely must take quicker action. But relief was quickly replaced by reality and a renewed terror – this was really happening.

He was booked in for a biopsy and finally was given a referral for a CT scan – something I had asked the GP for at the original appointment. But, again we faced weeks of waiting – waiting knowing that the most likely scenario was cancer, but not knowing the severity or prognosis.

Anxiety hit a new level and the waiting became unbearable. I reverted back to what I know best – proactivity, research and data. I organized paperwork and booked CT scans at private clinics (some 6hours drive away) in the hope of expediting diagnostic tests. But perhaps most significantly, I presented the facts of our experience to PALS and pointed out that the Government’s Cancer Pledge is  “A maximum 2 month (62 day) wait from urgent referral for suspected cancer to first treatment for all cancers” – we were on day 65 and looking at a further 14-21days before diagnosis.

The day after I sent that email my husband had a CT scan. Two days later he got a phone call asking him to go to the hospital immediately for a biopsy of his swollen lymph node.

A few days after surgery, my husband attended the blood clinic appointment booked to test the Cat Scratch hypothesis. This was the only appointment I didn’t attend – I had the kids and it was supposed to be a routine blood test. However, unannounced the Consultant Oncologist turned up to the clinic and presented my husband with a diagnosis:

Cancer. Metastasized Germ Cell Carcinoma, including a 7cm mass in his abdomen.

 

Thanks for reading! Let me know what you thought and don’t forget to share with your friends. By sharing my story I hope to encourage others take control of their health and that of their loved ones. 

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10 things I learned from Chronic Fatigue Syndrome / ME

I was diagnosed with Chronic Fatigue Syndrome (CFS) or myalgic encephalomyelitis (ME) in 2010.  I had been struggling to function for nearly a year and been told repeatedly that nothing was wrong with me – all tests were normal. I got CFS as I was writing my doctorate thesis and after having a really bad stomach virus that my body simply couldn’t recover from.

I was bedridden and/or housebound on and off for about 18months. I had extreme fatigue, brain fog, headaches, fibromyalgia – muscle aches and pains. I was uncontrollably losing weight, despite a voracious appetite, and my digestive system was playing up. At one point I also lost my vision.

It was a really hard time, though in amongst it all I completed my doctorate (yep, with brain fog…) and got married (albeit in slow motion)!  Despite those achievements, I faced the terrifying possibility that I wouldn’t ever be able to work or to have a family – how could I have kids if my arms were too weak to hold them?

It was time to take control of my health. I slowly managed to get myself functioning again by making significant changes to my diet and lifestyle. I have to keep a close eye on my health, particularly in light of a new diagnosis, but I am now able to have a busy, full life and I have two kids (who I can hold, cuddle and run around with!).

Here are 10 things I learned from CFS

  1. We don’t have an infinite supply of energy – diagnosed as a twenty-something this was news to me! It shouldn’t have been – I had spent a lot of my life feeling exhausted, but I had never really acknowledged or accepted it. It wasn’t good enough to be tired all the time – “I shouldn’t need to rest”, “I should keep going”, “naps were a waste of time” etc. I inevitably would pour another coffee or eat something sugary to see me through, then crawl into bed at 9pm.
  2. Energy should be spent wisely – Once you realise you only have a certain amount of energy to spend in a day, and that that amount is somewhat limited, you have no time for people and things that waste it – and that’s ok.
  3. Who gives energy and who takes it away – I realised that I invested a lot of energy into people. When I had CFS those who contributed to my life in some positive way and those who drained my energy became strikingly apparent. This was a really important life lesson. I stopped following-up with the “takers” and I felt immediately better. This was a clear lesson in self preservation.
  4. I am an introvert – and proud! – Despite having a keen interest in psychology, I hadn’t previously dwelt on, or investigated, which area of the various personality continuums I fall into. A very good friend of mine recommended I read “The Introvert Advantage”, by Marti Olsen Laney. For me it was life changing! I strongly related to this description: “Introverts draw energy from their internal world of ideas, emotions and impressions – they are energy conservers”. I realised that I had been living under the guise of an extrovert – perhaps to “fit in” to the extrovert world of science (which is bizarre as many scientists are introverts!).
  5. Physical activity doesn’t have to be high energy – many people with CFS are told that exercise is good – and for some a staged exercise regime works well. For a many years before CFS I would push myself into going to the gym, to swim or go to aerobics classes. In all honesty I hate the gym. I find nothing pleasurable in going at all, and now that makes sense. I much prefer being physically active outside, surrounded by nature or by positive non-judgemental people – its energising. I also realised that I don’t need to keep up with other people’s expectations of what a healthy exercise regime should be – its unique to me.
  6. My biggest energy drains – small talk, rubbish television, sugar, caffeine, anxiety, anger and stress.
  7. My biggest energy sources – one to one conversations with interesting people, time alone being creative and thinking, taking the time to enjoy and savour a really good cup of tea (caffeine-free), yoga, warm and nourishing food.
  8. My body knows what it needs – I just have to listen. For a long time my body had been giving me signs that things were not going well, but I did not acknowledged them. Had I been more connected with they way my body felt, and had a higher respect for it, my dip into the world of CFS may not have been so dramatic.
  9. Epsom salt baths are amazing – I believe everyone can benefit from bathing in Epsom salts! It rebalances magnesium deficiencies, soothes aching muscles, helps with sleep and is thought to encourage the elimination of waste and toxins (sip water while you bathe).
  10. What matters in life – who and what deserves my precious energy. I decided that I deserved my energy – my health was worth fighting for, that I wanted kids and opportunities to live a full life. My kids and family are worth my energy and so are the unique and beautiful people that I am lucky enough to call friends.

This is my experience with Chronic Fatigue Syndrome and I believe it was directly related to my recent Hashimoto’s Thyroiditis diagnosis. Everyone’s is unique – from the triggers to the symptoms and the factors that help or hinder recovery.

Want to regain your energy and take control of your health? Get in touch for a FREE Discovery Session to find out how!

Do you have experience with CFS? Do you know someone with it or who has had it? What did your experience with CFS teach you?

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4 signs your immune system is attacking you (and what you can do about it)

Autoimmune and inflammatory diseases  are becoming more prevalent and include Hashimoto’s Thyroiditis, Grave’s disease, Celiac’s disease, type 2 diabetes, arthritis, eczema, asthma, irritable bowl syndrome and Crohn’s Disease.

Most of us know someone with one of these, and some of us are unlucky enough to have one ourselves.

These diseases occur when our immune system goes wrong and attacks parts of our body, like the thyroid in my case, and/or when our immune system is constantly triggered into activation – Chronic Inflammation.

If having one of those diseases wasn’t bad enough, chronic inflammation also increases the risk of heart disease and stroke (Kristensen et al. 2013) and is linked with 25% of cancers (Eiró and Vizoso 2012). Click here to read my about experience as a carer for Cancer.

It’s really important to be aware of inflammation and to keep it as low as possible.

4 signs of chronic inflammation:

  1. You’ve been diagnosed with an autoimmune or inflammatory disease
  2. Tiredness and fatigue
  3. Muscle and joint aches and pains
  4. Strange things are happening with your digestion – e.g. you feel you have developed food intolerances, you have lost or gained weight or you are bloated.

(the last 3 points are general signs that something might be wrong and may need further exploration in collaboration with your doctor).

How to reduce inflammation

The best way to ensure we don’t put our body through any unnecessary inflammation is to avoid situations that tend to provoke it. Unfortunately, usually the foods we eat and the lifestyles we lead tend to promote chronic inflammation.

Here are 5 things to cut out today:

  1. Refined sugar and starches – These trigger the release of inflammatory messengers (cytokines) and are linked with increased intestinal permeability. Want to quit sugar? Contact me HERE.
  2. Alcohol (see my post “Why I’m going Dry for January”)
  3. Red meat – the NHS guidelines suggest a daily intake of 70g/day. See what Cancer Research UK has to say about it HERE.
  4. Stress – does what it says on the tin. Our bodies weren’t designed to be in constant fight or flight mode. Take time to relax, be mindful and look after your body.
  5. Chemical irritants – Get rid of unnecessary chemicals in and around your home! Help your family and the environment at the same time. Hints and tips for going eco-friendly coming soon!

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Your body and lifestyle are unique and so your inflammation triggers will be.  

Get in touch to work out what yours are and start feeling well again! 

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